In the meantime, I got info about the Celiac Center at Jefferson when I was at the eat-a-thon. I've decided that it doesn't make any sense to not have them as my medical team for managing my celiac disease. I tried all week to talk to an actual person in their office to get an appointment set, but to no avail. Very frustrating. I'm hoping that once I get into the groove with them, it won't be so hard.
Oh, and the hematologist's office called a couple of days after the appointment to tell me that I'm deficient in folate and that I should take a folic acid supplement. However, I've read that folic acid can increase risks for certain types of cancer. I'd rather seek to increase my folate consumption through diet, which means eating even more green leafies. I'm now on a quest for a blender so that I can start incorporating more green smoothies into my diet. I also want to talk to the dietician at Jeff when I finally get hooked in there to get a real plan for any nutritional deficiencies and to get a read on my bone density.